SEANSET'S POSTEROUS

It's been a while since I've done a blog post so I've persuaded Lauren to do a little video, she has been using TIPS (Tobi Podhaler) for just over a year now and we thought it would be a good idea to show everyone how easy this new treatment is compared to the regular neb routine. The plus points are that it can be done anywhere because you don't need to have a neb and all the pots plus there is no cleaning required, just slip it into your bag or pocket and away you go. There is more info about the Podhaler in an earlier post on this site. 

Today's ride was my first with a couple of guy's from work, they regularly go out, usually as a bigger group of about 6-8 riders but because of work/family commitments there was only the 2 of them today.

The journey to Sheffield normally takes just over an hour, but last night because of the snow it took us 3 hours to get there. We wondered if when we got there we would find the gig cancelled but we were happy to find it was to go ahead as planned. The effort to get there was rewarded by another brilliant show that contained some old JAM & STYLE COUNCIL tunes, plus a few of my personal favourites from the latest album....Wake Up The Nation, Fast Car/Slow Traffic and No Tears To Cry. I can't wait for the next time I can go to see him, I'm holding out until he plays the Royal Albert Hall so we can have another trip to London.

Yesterday marked the end of Summer for the Setterfields'. We had a good tidy up in the garden and packed away the chairs and furniture for another year. The fence, shed and back gate will all get a fresh coat of paint to help them weather an East coast winter next week. This weekend also marked the 17th anniversary of us moving into the house. So much has happened in that period of time, more than we would of hoped for at times but I guess that is just life and you've got to get on with it and do the best you can! I think Jo and I have? Oh, and of course when the conversation turned to Christmas the other day that is surely the sign of Summer being over!

Anyway that's all for now, I'm off to enjoy the wet & windy Bank Holiday in front of the TV. 

This time last week we were in London having a lovely few days away. I have already spoken about what we did on the Saturday, now for the Sunday. We started the day with a good healthy McDonalds breakfast at Marble Arch, we walked from there to Madame Tussauds. When we got there I was pleased I had pre-booked the tickets because the queue was right down the street! When we got inside, the place was absolutely packed but we managed to see most of the wax figures without too much pushing and shoving. The best part of the museum was a ride in a London black cab, it was sort of like a ghost train ride without the ghosts, it took you through the last 600 years history of London, starting in Tudor times through to present day.

The next time we visit London we are going to look around the Tower of London, Shakespeare's Globe theatre and definitely the Tate Modern gallery.  

 

 

 

 

I don't really mention Beth as much as I should on my Posterous, so today I'm going to talk about her recent GCSE Exam results.
For the past 2 years she has been studying to take her GCSE's, ready for when she finished school this summer. These have been in many subjects including English Language, English Literature, Maths, History, Health & Social Care, ICT, Business Studies & Food Technology. This week she received her results and we were very pleased with them.                                                                                                                                                                                  

English Language C, English Literature B,Science C, ICT 2 x C's, Business Studies 2 x C's, Health & Social Care 4 x B's, Food Technology C, History E                                                                                                                                                                                                                                                 So this now means she can go to Franklin Sixth Form College to study for her 'A' Levels. She is hoping to study English Lang/Lit combined, Business, History & Philosophy, these are for 2 years and will mean alot of hard work but I'm sure Beth will be more than capable of obtaining good grades in these subjects. Myself and Jo are very proud that she has done so well and will help and support her with whatever career path she takes after she finishes college. 

Well done Beth.

Today was Robyn's 3 monthly clinic at Grimsby with the CF team from Sheffield. Just before the last clinic she started with a cough and her PFT dropped to under 100%, so it was decided to start her on a months prescription of Cipro just to be on the safe side as she regularly grows pseudo. Her post Cipro PFT showed an improvement but still not up to her usual level, the cough swabs kept on coming back clear so it looked like the combination of Cipro & Promixin had done it's job. And so to today's clinic, her PFT was 108%, she has grown 4cm and put on 1.5kg! Way to go Robyn, if she had had socks on she would have surely blown them off! Prof.Taylor was very pleased with her overall health and has said that if all her test's come back ok when she goes for her Annual Review in September then he will look at stopping her Promixin. Lauren has got a planned stay in Sheffield coming up in September for some IV's and also to try to get her PFT on an even footing, I'm sure the new CF ward will help her with being in clink. So we continue to fight on and are more determined than ever to keep positive and support of our girls the best way we can.

We have just spent a really lovely weekend away in London. Lauren didn't come with us as she was at the V Fest in Stafford, rock on Loz! Now get a shower you stink!

Saturday morning we headed out from the hotel and caught the Docklands Light Railway from East India station and changed onto the tube at Bank, we got off at Tottenham Court Road and walked through to Covent Garden where we visited the London Transport Museum which was very interesting to see how public transport in London had developed from the 18th century through to today. When we had finished in the museum we went for a look around Covent Garden which is a very busy and vibrant place full of market stalls, shops, café's and lots of street performers.

The next place to visit was a short tube ride away, Harrods is where the very rich and famous shop, it was sold to Qatar Holdings in May this year for £1.5 Billion. The escalator's are very elaborate and look like an Egyptian palace. I doubt there is a shop like it anywhere else in the world and is definitely worth taking a look at even if you can't afford to buy anything!

Next stop on Saturdays tour was Buckingham Palace for tea with her Majesty. We got there just at the right time as they where just changing the Guard, this caused a massive surge of people heading for the railings for a photo, but of course this meant we couldn't get through for our date for tea! The rest of the afternoon was taken up with shopping in Oxford Street, yes I was a fool to think that I would get away without any shopping travelling with 3 girls!! 

Sunday to follow......